5 minute read During the years I was my mother’s family caregiver, I had widely different interactions with her physicians. Some embraced me as a partner in her care, talking directly to me during my mother’s medical visits about her symptoms and medications—and largely ignoring her. Afterwards, during the car ride home, my mother would […]
3 Minute Read This piece originally appeared on the Huffington Post. Posted here with permission. “You are treating her like she’s a piece of meat,” Tony was shouting angrily at me. I hadn’t the power to change the care his 62-year-old wife was receiving in my hospital’s intensive care unit—for the past two years, I had […]
Healthcare is awash in quality metrics. Registries of PHQ-9 scores. Frequency of visits. Decreased utilization rates. Reduced response times to emergencies. We believe they create better clinical outcomes through greater accountability of interventions and systems. Of course, there’s a great deal of truth here. But the touchy-feely therapist in me tells me there’s something […]
Dear RAISE Family Caregiving Advisory Council You are the Dream Team of family caregiving innovators, the all-stars of our fiercest advocates. Since President Trump signed the RAISE Family Caregivers Act in January 2018, mandating the creation of an Advisory Council to devise a national strategy for supporting family caregivers, we’ve been awaiting your anointment […]
Physician greets older male patient. Physician greets patient’s adult daughter. Physician asks about patient’s conditions. Physician asks for daughter’s input. Physician does physical examination. Physician makes recommendations and writes scripts. Physician asks patient and daughter if they have questions. A very normal-sounding outpatient medical visit, right? What could possibly be wrong with this picture? For […]
As befits his majestic name, Brian Duke threw down the gauntlet. “If you really want to help health systems do a better job of supporting family caregivers,” said the former Secretary of the Pennsylvania Department of Aging and the current System Director of Senior Services for Main Line Health in suburban Philadelphia, “then you better […]
Around the long mahogany board room table, the 40 middle-age nurse and social work care managers of this large Medicare ACO regarded me with a mixture of inquisitive and impassive looks. I was supposed to deliver the good news on how strategies for supporting family caregivers are becoming more sophisticated. I started off by asking […]
During the 24 years I worked as a psychologist in family medicine, I heard many complaints about patients’ family members gumming up the healthcare system in various ways. For instance: “My patient’s wife keeps asking me to do things I can’t do—like arrange for her husband to live elsewhere—and taking up my time with frequent […]
